Storage and Secondary Use
After testing is finished, a baby's sample is stored in a secured facility as part of their medical record. It is stored for 19 years and then destroyed. Samples are stored so they can be used to make sure that the newborn screening tests are working properly. This can benefit all babies in Ontario.
Sometimes a baby's sample is needed in the future by their doctor to run extra tests. Storing the sample means it is available if needed. Other possible uses for stored samples include testing by other laboratories upon parental/guardian request, the development of new or improved tests at Newborn Screening Ontario (NSO), uses for which a legal warrant or court order is issued, and research approved by a research ethics board. In general, information that can connect a baby to the bloodspot sample can only be shared if you okay it in writing or if it is required by law.
For more information, please read our policy on the storage and secondary use of dried blood spots. If you would prefer that your baby's sample not be stored, you can ask us to destroy a sample or release it to you. An original copy of the form is required to complete the request.
For more information, please do not hesitate to contact us.